Jesy Nelson has shared a sweet video of her twin daughters after they had surgery to remove their feeding tubes amid their battle with Spinal Muscular Atrophy (SMA).The former Little Mix star, 35, posted the Instagram clip of Ocean and Story, 15 months, lying on mats on the floor with the caption ‘my whole heart’.Jesy recently shared her joy at ‘getting her daughter’s faces back’ when they had their feeding tubes removed at the start of the month.Posting a video following the operation to the song My Little Light by Mary of Gold, Jesy delighted in being able to see her smiling babies.Ocean and Story were dressed in white baby grows, with one of the little girls reaching out to touch the other in an adorable moment. Jesy Nelson has shared a sweet video of her twin daughters after they had surgery to remove their feeding tubes amid their battle with Spinal Muscular Atrophy (SMA) The former Little Mix star, 35, posted the Instagram clip of Ocean and Story, 15 months, lying on mats on the floor with the caption ‘my whole heart Posting a video following the operation to the song My Little Light by Mary of Gold, Jesy delighted in being able to see her smiling babiesIn September 2025, Jesy announced her twins, who she shares with her ex Zion Foster, were diagnosed with the rare muscle-wasting condition SMA Type 1 (SMA). And while she previously admitted that she was ‘terrified’ for her twins to undergo surgery to have the tubes removed, she couldn’t hide her joy last week as she told how she’s ‘got their faces back’.In a heart-warming video shared to her Instagram story, Jesy showed the girls in their hospital beds ahead of the procedure, where she called them ‘the bravest girls in all of the world’.Hours later she uploaded images of the twins sleeping with their faces free from the tubes, with Jesy adding that it ‘feels like a dream’ to see. The nasogastric (NG) tubes are a short-term solution to feeding when muscle weakness makes swallowing unsafe or hard to eat enough food to grow.The singer also added a picture of a hair clip with the words ‘good things are coming’ as she embraced the positive during her girls’ health battle.Earlier this week, Jesy posted a sweet picture of the babies, alongside the caption: ‘Today is the last day of my baby girls having [their] ng tubes on their faces…’As terrified as I am about them having [their] operation tomorrow, I cannot wait to finally see their faces again and see their little dimples that are always under these plasters…’I’ve honestly forgotten what it feels like to cuddle them and not worry about puling their turbe out [their] nose or plasters [off] their face. It really is the littlest things we take for grranted as parents.’ [sic] While she previously admitted that she was ‘terrified’ for her twins to undergo surgery to have the tubes removed, she couldn’t hide her as she told how she’s ‘got their faces back’ Hours later she uploaded images of the twins sleeping with their faces free from the tubes, with Jesy adding that it ‘feels like a dream’ to seeWhat is spinal muscular atrophy? Spinal Muscular Atrophy (SMA) is a disease that weakens a patient’s strength by affecting the motor neuron cells in the spinal cord.It results in gradual muscle wasting and the severity of symptoms varies by type.Type 1 SMA is the most severe and is evident at birth. The weakening of muscles means sufferers cannot sit and usually leads to death by the age of five.Type 2 is intermediate with the sufferer being unable to stand.Type 3 is mild and makes it difficult to get up from a sitting position.Type 4 sufferers don’t have symptoms until they are in their 20s or 30s.<!- – ad: https://mads.dailymail.co.uk/v8/us/tvshowbiz/none/article/other/mpu_factbox.html?id=mpu_factbox_1 – ->
Last month Jesy revealed her joy as she announced the SMA Type 1 screening test will now be rolled out across the whole of the UK as a result of her campaigning. She has been campaigning tirelessly for the screening to be instated. Sharing the latest update exclusively with the Daily Mail, Jesy said she was ‘so proud’ of everyone involved as she celebrated the difference this will make to babies with SMA as she added ‘this is all I ever wanted.’ Revealing the news, Jesy said: ‘OK, so yesterday I had a phone call with Sharon [Hodgson], the health minister, and James Murray [Secretary of State for Health and Social Care] and they have decided to roll it out across the whole of the UK.’It’s an emotional day. I’m still taking it in to be honest. It’s amazing. It’s just mind-blowing. I feel so proud. I just feel so proud of everyone that’s been a part of getting it to this place because now future SMA baby’s lives are gonna look completely different. And that is all I ever wanted.’It will never not be heartbreaking to hear that your child has SMA, but to know that their life will not have to look like this is just amazing.’In June, Jesy headed to Parliament for a debate on whether a newborn screening for the disease would be rolled out across the whole of England.Devastatingly the result of the debate was not what Jesy and the SMA community had hoped for and the decision remained that only 72 per cent of the country would have access to newborn screening when it is introduced in October, while the other 28 per cent still wouldn’t. However, the Government has now confirmed the expansion of the scheme that will see hundreds of thousands of babies screened in the rollout which will begin in October this year. SMA can leave babies unable to sit up, crawl or walk. In the most severe cases, it stops them breathing or swallowing but caught early enough treatment can significantly improve outcomes for affected children.Testing works through a simple heel prick to collect a small sample of blood from the baby, taken shortly after birth.